To Take or not to Take: Compensation in an age of Cynicism* Part II

page 1, rough draft

page 2, rough draft

To Take or not to Take: Compensation in an age of Cynicism*

I received a phone call this morning from the medical co-ordinator, (Ms. S), informing me that the tests I had done recently have come back fine, and everything so far, is on track.

Then, at her initiative, we briefly discussed how my case is a complicated one, with many factors (such as Hep C) to consider. I agreed with her that my case is indeed complex, and stated, “That is what you get when you are in the medical system long-term”.

To which she laughingly replied, “Yeah, you could write a book. You should write a book”.

Now I am not sure whether she knows that I am creating ‘How I Contracted Hep C and Other Bedtime Stories’, but my experience with some social workers / medical co-ordinators from this one particular large downtown hospital has shown me that they can be sneaky, and will hint at an extraneous (and personal) pieces of information that have been casually mentioned in medical files, hoping that I, the patient, will freely (and at length) divulge more information. I did not. I bid her goodbye and (politely, I might add) hung up the phone.

But immediately upon finishing the call, I had to chuckle to myself. Yes, Ms. S, I will write a book. I will.

Speaking of which, I am currently working on a few pages about having being a part of (one of the) class-action lawsuit(s) against the Canadian Red Cross / Canadian gov’t, and the resulting compensation that ensued. This was a long and arduous process, not only in the sense of the ridiculous amount of paperwork that needed to be completed, but for the emotional reasons as well. Stay tuned as I continue to work on these pages.

*cynicism: refers to the beliefs of an ancient school of Greek philosophers known as the Cynics. Their philosophy was that the purpose of life was in rejecting all conventional desires for wealth, power, health and fame, and by living a simple life free from all possessions.

The Infamous Krever Inquiry Strikes Again

I never thought that I would admit this, but completing the seemingly mudane task of folding the laundry is a welcome relief; while the graphic novel is slowly coming along, it is a ton more work than I ever realized. How does one organize the re-telling and illustrating of whole historical events, nevermind the personal details of each person affected by such events?

I think I was ambitious...(!)

Speaking of ambition (and Hep C), tomorrow is none other than the third annual World Hepatitis Day

This is a chance to raise awareness of Hep B and C, as well as increase political support for the diseases to levels seen in HIV / AIDS,etc. Approximately 170 million people worldwide have either hepatitis B or hepatitis C. This represents 1 in 12 people...people like me. People (maybe) like you...?

The Scarlet 'H'

After I found out that I had Hep C, I informed my roomates of this news. I barely knew, at the time, what Hep C was, nevermind being able to explain it to other people. Indeed, at that time in history, not much was known about the virus, at least not publically, anyway.

I have to admit that I felt an increasing isolation from my peer group due to some comments and questions that I encountered, questions like "is it safe to share utensils with you?" I felt like I, much like Nathaniel Hawthorne's main protagonist, had a large, shameful letter 'H' on my chest, for all the world to see.

That utensil question, asked immediately after I had informed my friends of my positive status, may have been a valid question considering not much was known, in the mid-nineties, about how Hep C was spread. It was, however, ill-timed and unsympathetic.

Dentist woes

Well, I finally have a new dentist. It is embarrassing to admit, but not only have I not gone to my dentist for an unreasonably long amount of time, but my new dentist is less than a block from where I live. In fact, I can actually see the dentist sign from my office window as I type this. That is procrastination, my friends!

So why am I writing about the dentist, you ask. Well, the other day, in my failed attempt to get into see a (medical) doctor at the walk-in clinic just up the street, I had to walk past the aforementioned dentist office. I decided, on the spur of the moment, that today would be the day that I would go in there, and book myself a cleaning. So I did just that -- I walked in.

The receptionist was efficient but friendly, and immediately made me an appointment for the first Monday in March. At that point, however, at the time, the inevitable question floated into my head: do I tell her about my Hep C+ status?

This is a dilemma, as too much information at the wrong time can be as damaging as no information. But, recognizing that dentists put themselves at risk by dealing with my teeth/gums/etc I, at some level, prepare myself to possibly be denied services.

Moreso than the possiblity of needing to inform her of my positive status, I was upset at myself for feeling ashamed (about having the virus). Why would I be shamed? I do not know -- I never engaged in any typical activities associated with Hep C transmission that may be frowned upon by the general public; I simply had blood transfusions that had not been checked properly for HCV. That's it. Not my fault.

So, I quietly gave myself a good talking-to, and in the end, I did not devulge my positive status to the receptionist. I left the office, glad for an appointment, and willing to discuss such "issues" with the dentist him or herself.

Look for it!

West Central Streets is a non-profit community newspaper based in the West Central community of Winnipeg, bounded by Portage, Arlington, Notre Dame and Carlton. The purpose of the paper is to give voice to the interests, struggles and achievements of people who live in the community.

As one of those people who choose to live in this particular community, plus being an illustrator who is working on a graphic novel about the tainted blood scandal, I somehow ended up in the latest edition.

So if you live in the West End of Winnipeg, look for my shiny face & accompaning article in your mailbox at the end of the month!

In case you did not make it out to the show...

here are a few photos to re-create the event. Imagine with me, if you like, an intimate (small) gallery of two rooms, 30+ illustrations framed in blue and hanging from the walls, 40ish people mingling about, live music filling the air, and finger-food of veggies, dip, cracker, cheese and non-alcoholic beverages (good-for-your-liver wine)...and then it will feel ike you were really there.

All photos courtesy of Mandy Shostal. (Thanks Mandy!)

Highlights from the Edge

The show last Friday was a success, with food being eaten, people meeting each other, artwork being discussed, and of course, live music to round it all off. Although I was exhausted by the end of the evening, I enjoyed myself and appreciated the encouragement such feedback gave. Thank you everyone who came!

The preview illustrations will be available for viewing from 12 - 5pm for the next 2 days (The Edge Gallery at 611 Main st.)

And if you cannot make it out to the gallery by Thursday, then here are a few highlights!

Enjoy the 'show' -- !
1. Whose Fault is it?
I get my best ideas and thoughts sorted when doing seemingly mundane tasks such as brushing my teeth.
I am intrigued by the commonality of brushing one's teeth. I wonder if Bill Clinton brushed his teeth minutes before accepting the role of Governor of Arkansas in 1978? It was during this time, as tainted blood flowed from Arkansas inmates to other countries then-governor Clinton did not act, despite evidence of severe mis-managment in his prison system and medical operations...

At the time, prisoners were paid $7 US for each pint of "donated" blood.



2. Chronic Renal Disease and Other Things Six-Year-Olds Do Not Understand

3. "Housekeeping!"
In response to the Access to Information request, the Canadian Blood Committee destroys all its minutes and taped proceedings of its meetings dating back to its formation in 1981, a move it later tried to pass of as mere “housekeeping.” (PICARD 218)

Show!

In one month (less a day) I will be hosting a presentational preview of my graphic novel at the Edge Gallery on Main st., here in good ol' Winnipeg. You can expect great music, some light refreshments, a few finished pieces of art and some as-of-yet-to-be-polished illustrations. Sounds like fun to me!

Beginning

If I could, I would invent a cure for hepatitis c.

As it is, my great Creator decided to endow me with some artistic gifts rather than scientific leanings. So here is a glimpse into a visual expression of my story, and likewise, the tale of approximately 60,000 other Canadians affected by the tainted blood scandal.

This blog has been created to reflect the artistic process, and as such, many illustrations will be in rough format. I hope, nevertheless, that you learn from and enjoy my illustrative inventions -- !